It’s just so odd, the feeling these medications are leaving me with. I’ve never felt like this before and the lost feeling that’s part of it isn’t like a normal lost feeling to me, I normally can out think or overcome my feelings of being lost in life in general.

I think these meds the doctor has me on, the

prednisone and Shingles medication, doesn’t mix well at all. The they gave me gabapentin on top of those, and they have given me another bottle of prednisone, this one has 250 pills in it. I’ve been on prednisone for almost six weeks now at a very high daily dose. This is because of my Crohne’s. I have severe Crohne’s with complications, I’ve had life-saving surgery already.

I normally get infusions of Entyvio every 8 weeks, now because of a flare-up they are not sure it’s working for me. But they have planned to give me the infusions more often, every six weeks instead, with all the research I have done, and the Entyvio website information on dosing, it’s not going to happen. No where can I find that anything but every eight weeks is allowed! They will have to try something else or keep me on Entyvio and figure this was an isolated flare-up. Normally I have been steady since my surgery about 4 years ago. From the first week of prednisone and a doctor’s attempt to put me on Depakote, was the start of an extra 20 pounds I’ve been carrying. It makes me feel so bad in many ways. I dropped the Depakote with my doctor’s understanding, and all doctor’s are saying the prednisone is the culprit, I hate this and want off of this medicine but they just give me more.

Everything is so up in the air right now.

M♥a♥r♥y

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